Anyone with tinnitus, whether it's pulsatile or non-pulsatile, can relate to the frustration of hearing a
sound that others can't. It's enough to make anyone crazy sometimes. And no matter how you
try to explain the sound to others, there's simply no way for anyone to understand unless they get in
your head.
I have objective pulsatile tinnitus, which is rare. My doctors can hear my pulsatile tinnitus with a stethoscope.
If your doctors can't hear your whoosh, then you have subjective pulsatile tinnitus. There's an
older Whooshers.com post about objective vs subjective pulsatile tinnitus here. That my doctors can hear mine doesn't really mean they can truly empathize with the constant whooshing
I hear or the energy (brain power) it takes to ignore it on a second-to-second basis. This kind
of understanding is important as we try to cope and find answers.
If you suffer from subjective pulsatile tinnitus --
or if you have objective pulsatile tinnitus but you'd like family members and friends to understand what your pulsatile tinnitus
sounds like -- you might be able to find an audio file that sounds similar to your whoosh and play
it for others to hear.
In 2009, I found a bunch of links to audio files of different heartbeat-like sounds:
LINK 1
LINK 2
LINK 3
LINK 4
No, these aren't official whooshes or real "pulsatile tinnitus" sounds... some are heart murmurs, venous
hums, bruits, and others are electronically simulated sounds. In other words, I'm just suggesting
that the sounds may mimic what we hear, not that because I hear a whoosh that sounds like a heart murmur (for example) that
that means my whoosh is an indication of a heart condition. Only our doctors can truly determine
a cause. I just thought, hey, my whoosh sounds like a heartbeat without the thump. So I did
some online searching for "heartbeat sounds."
I listened to as many as I could find,
and I finally found one that sounded very much like mine. Mine sounds most like "ventricular
septal defect" in Link #1. I downloaded it and played that audio file for my family and friends on my computer,
even adjusting the volume to coincide with the volume of my whoosh in the room.
They were SHOCKED,
I tell you! I thought I'd been describing the sound well, but there's no replacement for actually hearing
the sound. After hearing just a brief 30-seconds of whooshing via my computer, they had a whole new
appreciation for what I was dealing with. They said, you hear THAT? ALL THE TIME?????
If you
haven't already, I encourage you to listen to these files. There are many! See if you can find
a whoosh that sounds like yours. When you do, adjust the volume so it sounds as loud as your whoosh,
and play it for others. Here's another great tip from one of our Facebook group members: try talking to people while they listen to the whooshing sound, too, so they may better understand how distracting
the whoosh is! Another good idea is to download it to a device that you can take with you to your doctor's office.
Some aspect of the sound (pitch, volume, etc.) may provide a hint as to the cause of your whoosh. You never
know. At the very least, it may increase the compassion you receive at the doctor's office when you walk in and tell
them you hear a noise.
If you don't find a file above that sounds like your pulsatile tinnitus, do an online search
for the sound you hear (for example, buzz, buzz, buzz or chirp, chirp chirp) to try to find some audio
that sounds like what you hear. If you have trouble finding one like yours, I'd be happy to help
you look! Chances are, someone else is just like you and can't identify theirs either.
And if you
do find
a file that sounds like yours here or elsewhere, please leave a comment and/or link below in the "Comments"
section, so we can compare our whooshes. They come in many varieties, apparently! And if you
find another file or set of files that you think I should add to my list for other whooshers, please send
me an email to
whooshers@gmail.com to let me know.
Finding an audio file to play for my loved ones helped me relay what I'm going through.
It helped people I know understand --even for just 30 seconds or a minute-- what my pulsatile
tinnitus sounds like and why I spend so much energy trying to ignore it and get rid of it.
If only I could turn
off or pause the audio file in my head!!
WhooshEr