Whooshers.com was created primarily to provide a forum for sufferers of pulsatile tinnitus in all stages of diagnoses.
According to many major medical institutions, only 3% of tinnitus sufferers experience pulsatile
tinnitus. The rare symptoms create challenges for patients and diagnostic challenges for the medical communities that
serve them.
Whooshers world-wide have united on Web sites like this one to compare stories, experiences,
frustrations, and success stories.
All in an effort to find answers.
Whooshers.com is also a resource for the medical community. Links to articles, research organizations, other Web sites,
frequent polls, and patients’ testimonials offer valuable insight into the symptoms of pulsatile tinnitus.
A common frustration among sufferers is that it is difficult to find doctors familiar with the symptoms of pulsatile tinnitus
and/or its long (and perhaps indefinite) list of possible causes.
As a result, many patients are not being
screened properly. A simple Web search for symptoms of pulsatile tinnitus (“I hear my heartbeat in my ear,” “whoosh,”
“sound in my ear”) reveals numerous blogs, medical forums, etc. on which the majority of patients report being
told they must “live with” this condition, often before all possible causes are tested and exhausted.
That the constant, heartbeat-like sound sufferers hear has a name is simply not enough.
We
want and need to understand more about pulsatile tinnitus.
While it is still the case that
there is no cure for regular, nonpulsatile tinnitus, it may be possible to discover --and even cure-- some causes
of pulsatile tinnitus.
Whooshers.com would like to facilitate communication between doctors specializing
in pulsatile tinnitus causes and sufferers of pulsatile tinnitus symptoms.
If you are a doctor, medical researcher,
or other member of the medical community who would like to help in this effort, please contact whooshers@gmail.com in confidence.
If you are a whoosher, you are encouraged to print this note and deliver it to your doctor(s).
All ideas
and/or comments are welcome.
Communications sent to
whooshers@gmail.com will not be posted or otherwise disseminated without prior permission from the sender.
Thank you.