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Whoosh [hwoosh, hwoosh, woosh, woosh] noun 1. a loud, rushing noise, as of air or water: a great whoosh as the door opened. verb (used without object) 2. to move swiftly with a gushing or hissing noise: gusts of wind whooshing through the trees. verb (used with object) 3. to move (an object, a person, etc.) with a whooshing motion or sound: The storm whooshed the waves over the road. Also, woosh. Origin: 1840-1850; imit.

Pulsatile tinnitus is a rhythmical noise that is synchronous with the patient's heartbeat.

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SleepPhones Holiday Sale!

Use code SILENTNIGHT for 25% off US orders of $50 or more. Includes free shipping.  Using this link your order will provide a portion of proceeds to our Whooshers.com community!  Good through Friday, December 2, 2016!

Sun, November 27, 2016 | link          Comments

Pulsatile Tinnitus Publicity: "A Quest to Explain the Whooshing in Her Head"

This story was also picked up by PBSNewsHour.  

Great publicity for our community and for our new pulsatile tinnitus medical codes.  

Sat, October 29, 2016 | link          Comments

Finally! Announcing the New, Official ICD-10-CM Pulsatile Tinnitus Diagnosis Codes!

Many of you signed our petition for a formal pulsatile tinnitus diagnosis code.  Well, our community has been heard!  

H93.A1 Pulsatile tinnitus, right ear

H93.A2 Pulsatile tinnitus, left ear

H93.A3 Pulsatile tinnitus, bilateral

H93.A9 Pulsatile tinnitus,unspecified ear 

These codes go in effect October 1, 2016.  

This is TRULY a fantastic development.  So many of us have been assigned a "tinnitus" diagnosis code, when what we experience is not tinnitus at all.  Pulsatile tinnitus is not tinnitus.  This is an important, validating change, and, in some cases, it will be a life-saving change to the way our cases are documented. With a distinguishable code, more medical professionals will research OUR symptom, recognize the complexities unique to OUR cases, and know better than to tell us to "live with it" before ordering a thorough and appropriate medical evaluation. 

For those keeping track, the codes are within Chapter 8 - Diseases of the ear and mastoid process.  We know that the underlying causes of pulsatile tinnitus go beyond diseases of the ear, and, in fact, most causes do not have anything to do with the ear.  However, I still think this is a positive development that will go to great strides to distinguish our cases from regular tinnitus cases, resulting in quicker and more appropriate evaluation.

Hooray for Whooshers everywhere!  Make sure your doctors are aware of the new PULSATILE TINNITUS DIAGNOSIS CODES!

Sun, August 28, 2016 | link          Comments

A Diagnosis is Only Half the Battle

story recently published by The Columbus Dispatch out of Columbus, Ohio, highlights a diagnosis and attempted treatment for pulsatile tinnitus. Unfortunately, the treatment was not successful, however the story accurately identifies her symptom as *pulsatile* tinnitus and describes the frustrating and, sadly, common quest many of us experience to achieve a diagnosis.    

Her diagnosis, dural arteriovenous fistula (DAVF) is one we have seen before.  It is an underlying cause that can be dangerous if left untreated.  According to Johns Hopkins Medicine, DAVF is "an abnormal connection of vessels in the tissues around the brain or spinal cord in which one or more arteries are directly connected to one or more veins or venous spaces called sinuses."  Also, see this page for more info written for patients' understanding.  

There are numerous medical reports and personal stories about DAVF linked to on our Cured Whooshers page, including successful treatments.

This story is a reminder that each case is unique. Treatment can be complicated. A diagnosis is only one step toward silence.  

Like many in our community, this patient was her best advocate and wouldn't take "live with it" for an answer. According to the story, she was seen by half a dozen specialists before her underlying cause was identified.  

Our community, especially those of us diagnosed with DAVFs, wishes this patient the best during her recovery and her continued quest for silence! You're not alone!

As this story illustrates, it's a big accomplishment to find the underlying cause of pulsatile tinnitus, but it is only half the battle.  

"Athens County woman undergoes surgery to stop hearing her heartbeat in her head," The Columbia Dispatch, Emily Tate, June 10, 2016. 

Note: if you do not have a subscription to the site, access will only be allowed for limited clicks.    

Sat, June 18, 2016 | link          Comments

Weill Cornell Medical College in New York Announces a New Clinical Trial for Pulsatile Tinnitus

The FDA and the Weill Cornell Institutional Review Board (IRB) have approved a new clinical trial for pulsatile tinnitus at Weill Cornell Medical College in New York City.  The study will specifically address cases of stenosis (i.e. narrowing) of veins near the brain, most commonly the transverse and sigmoid sinuses.  

Read more information about the new clinical trial here

See additional info about the "Venous Sinus Stenting to Treat Intractable Pulsatile Tinnitus Caused by Venous Sinus Stenosis" study on www.clinicaltrials.gov.

And be sure to review (with your doctors!) the Cured Whooshers page for medical reports and personal stories related to venous sinus stenosis (see transverse sinus stenosis or sigmoid sinus stenosis). 

Sat, May 14, 2016 | link          Comments

Prognostic Significance of Pulsatile Tinnitus in Cervical Artery Dissection (CeAD).

This is an interesting report involving an international Cervical Artery Dissection and Ischemic Stroke Patients (CADISP) study group.   

Read the abstract here

Authors: Kellert L, Kloss M, Pezzini A, Debette S, Leys D, Caso V, Thijs VN, Bersano A, Touzé E, Tatlisumak T, Traenka C, Lyrer PA, Engelter ST, Metso TM, Grond-Ginsbach C; Cervical Artery Dissection and Ischemic Stroke Patients (CADISP) study group. Eur J Neurol. 2016 Apr 27. doi: 10.1111/ene.13031. 

Sat, April 30, 2016 | link          Comments

Support Pulsatile Tinnitus Research! The Otology Research Fund at the University of Maryland School of Medicine

For all of us who have been looking for pulsatile tinnitus research projects, I'm thrilled to announce that The Otology Research Fund, maintained by the the Department of Otorhinolaryngology - Head and Neck Surgery at the University of Maryland School of Medicine, is conducting - and looking for donations to support - research programs related specifically to pulsatile tinnitus.

If you are inclined to make a donation you should indicate PULSATILE TINNITUS on the donation page and 100% of your donation will go toward PT research.

From their site: "Ongoing clinical and translational studies for pulsatile tinnitus include research directed towards understanding sigmoid sinus wall anomalies, idiopathic intracranial hypertension, transverse sinus stenosis, and other venous causes of pulsatile tinnitus. These include developing models for reproduction and modulation of pulsatile tinnitus, radiographic imaging techniques, and surgical interventions."

The School is very familiar with our community and has been looking for ways to help us - this is a big step!

Join me in supporting them! Click here to learn more.

Thu, March 31, 2016 | link          Comments

Whooshers.com Mentioned in Good Housekeeping UK!

Thanks to our friends on the other side of the pond for this exposure to help increase pulsatile tinnitus awareness!  The piece is in the Good Housekeeping UK Feb 2016 issue, in their "Look Younger, Live Younger" page. 

To see the article in full, click on the Whooshers News & Press page and download the PDF.

My question is, Queen Elizabeth, are you reading Good Housekeeping UK

GHLookYoungerLiveLonger.jpg

Republished with permission from Good Housekeeping UK 

Sat, February 27, 2016 | link          Comments

WHOOSHERS Unite! (A Poetic Acronym)
By Sandra Lemon Simmons

Whenever it gets still and quiet

Hope drains that I’ll find a peaceful rest
Obscured only slightly beneath my breathing
Oblivious to everyone else
Seeking ever constantly for some relief I wrestle
Hindered by too many interrupted thoughts
Every heartbeat in my chest reverberated like a mighty
River flowing. Leaves me lost.
So, I am a one amongst the many
Whooshers waiting, wondering bound to afflicted others by this shared malady
Misunderstood by most friends and loved ones and too often
Dismissed and misdiagnosed by many in medical communities.

Now as mis-education is finally being surmounted
Our combined voices lift high for singular recognition
Many have found cures from several varied diagnoses
Both surgical and medicinal relief from our shared PT condition.

We Whooshers welcome your candid input
Testimonies of each one’s urgent plight
There is comfort in the sharing, for with each victory gained…
There is new hope for peaceful nights!

DivinelyDowanna!
August 6, 2013
12:37 p.m.
Sat, January 23, 2016 | link          Comments

A Whoosher Medical Mystery: A Pulsatile Tinnitus Case Highlighted and Solved!

What could be better than starting the year off with some excellent pulsatile tinnitus publicity?

For the second time, The New York Times has highlighted a pulsatile tinnitus case in their column, "Think Like a Doctor."  A patient's case and struggle for a diagnosis for strange symptoms that stump doctors is described, diagnostic test reports are displayed and then the comments section welcomes ideas as to what the heck may be going on to cause the patient's symptoms.  

This week's mystery was about another pulsatile tinnitus patient whose symptoms eluded even some of the best doctors around.  As you'll read, the patient had extensive diagnostic testing and a number of possible causes were ruled out.

Like many pulsatile tinnitus patients, this one went to an ear specialist after whooshing for a long time.  We know that the underlying causes of whooshing only rarely have anything to do with the ear(s) but it's completely logical for patients to start with an ear specialist.  The problem is, when the ear specialist gives us the all clear (because ear issues typically ARE absent), often we're sent on our way home without a referral to ANOTHER type of specialist to complete the warranted medical workup.  But the ear specialist in this patient's story, who realized he was stumped and had exhausted his knowledge of the culprit, did the right thing: Instead of sending the patient on his way, he referred the patient for diagnostic imaging and then to other specialists to review the patient's films.  Without the diagnostic testing, the patient would never ever have been diagnosed properly. 

But the success of a test not only depends on whether the test may detect the cause - it also depends on the eyes looking at the films.  Unfortunately for the patient, again and again, the doctors who reviewed the films gave the patient the all clear. The films were circulated some more, however, and finally a doctor isolated the causes - two of them! - and the patient was finally on the road to treatment and silence.  

And speaking of the patient, whose identity was obviously not revealed in the story, KUDOS TO YOU for your persistence seeking a diagnosis and for being your best advocate.  The end of the piece indicates that it was the PATIENT, not a doctor, who self-referred to the radiologist who ended up diagnosing the cause.  Roaming around with all your films in a big place like New York City with a symptom as wacky as pulsatile tinnitus, and dragging yourself from appointment to appointment after doctors one by one tell you over and over that "you're fine" and that nothing is evident on your films, is NOT EASY.  Good for him for hanging in there.  Enjoy the much-deserved silence!

Unlike tinnitus, many causes of pulsatile tinnitus can be identified and treated.  Our mantra here on Whooshers.com is CIRCULATE YOUR FILMS! Yet again, we have a wonderful example of a patient who did just that and, because of it, is now enjoying the wonderful consequence of silence!

SPOILER ALERT: The diagnosis has been posted, and a link to the details is below.   

UPDATE: The diagnosis was twofold: Fibromuscular Dysplasia (FMD) and a fistula between the patient's vertebral artery and vein. And, unlike any other time, NOT ONE READER guessed the proper diagnoses.  The doctor in the piece did though, and the patient is now Cured Whoosher

You can read more about FMD and fistulas on our Cured Whooshers page, where individual medical reports and personal stories from real Whooshers are posted. 

The last "Think Like a Doctor" column that highlighted pulsatile tinnitus was just as interesting!

Sat, January 9, 2016 | link          Comments

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RESOURCES

NEW: Click Here to Download the PDF, "Top Ten Pulsatile Tinnitus Tips for Doctors." Review it with your GPs and ENTs!

Radiation Dose Chart - American Nuclear Society (ANS) Public Information Resources Page: Click here for an interactive dose chart for various medical diagnostic tests. A downloadable and printable version is also available on this page. Discuss with your doctors.

Find a Neurotologist: American Neurotological Society (ANS) Membership Roster 2015-2016, by state (US) - International contacts at the bottom of the page. NEW! (This PDF file will download when you click here)

Find a Neurointervention Specialist: Society of Neurointerventional Surgery (SNIS)- Click on "Physician Locator"

Find a Neuro-Ophthalmologist: The North American Neuro-Ophthalmology Society (NANOS)

Site: Neuroangio.org - Your neurovascular education and information resource. Patient Information.

UCSF Pulsatile Tinnitus Clinic

Blog: Tales From Clark Street

Presentation: "Algorithm for Evaluation of Rhythmic Tinnitus," Douglas E Mattox, MD, Patricia Hudgins, MD, Jahrsdoerfer Lecture, University of Virginia, March 25, 2010. (This link is to the abstract/summary)

Presentation: "Imaging of the Patient with Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, Dec 2013. (NEW! Mentions Pulsatile Tinnitus and Whooshers.com. Republished with Permission.)

Article: "Imaging in Pulsatile Tinnitus: Diagnostic Pearls and Potential Pitfalls," B. S. Purohit, R. Hermans, K. Op de beeck; 1SINGAPORE/SG, 2Leuven/BE, European Society of Radiology, 2014.

Article: "Imaging In Pulsatile Tinnitus : When Should It Ring A Bell?" G. Bathla1, V. Chong; 1singapore/SG, 2Singapore/SG, European Society of Radiology, 2012."

Article: "Emma's Story," A Personal Account of Pulsatile Tinnitus, The British Tinnitus Association (BTA).

Article: "Pulsatile Tinnitus: Contemporary Assessment and Management," Aristides Sismanis, Current Opinion in Otolaryngology & Head & Neck Surgery: October 2011 - Volume 19 - Issue 5 - p 348357 doi: 10.1097/MOO.0b013e3283493fd8, Otology and neuro-otology: Edited by Myles L. Pensak.

Article: "Temporal Bone: Vascular Tinnitus," William W.M. Lo and M. Marcel Maya, Vascular, pp.1361-1374, 2003.

Article: "Diagnostic Clues in Pulsatile Tinnitus (Somatosounds)," Carlos Herraiza and José Miguel Aparicioa, Unidad de Acúfenos; Instituto ORL Antolí-Candela, Madrid, Spain; Unidad de Otorrinolaringología, Fundación Hospital Alcorcón, Madrid, Spain; Otorrinolaringología, Hospital Quirón, Madrid, Spain, Acta Otorrinolaringol Esp. 2007;58(9):426-33. This is a link to the article abstract.

Article: "How I Struggled with (PULSATILE) Tinnitus," The Story of Actor Graham Cole, Daily Mail Online, January 10, 2007.

Article: "I Got Lifesaving OP for Whooshing Thanks to US Help," David Powell, Daily Post UK, DPW West, Feb 19, 2013.

Article: "Vital Signs: An Unwelcome Ringing," by Dr. Christopher Linstrom, Discover Magazine, April 2010. (About a cured patient with pulsatile tinnitus symptoms!)

Article: "Tinnitus Highlights Poor Doctor Patient Communication," Martin Young, MBChB, FCS(SA), Diagnosis and Treatment, KevinMd.Com, November 2010.

Article: "Pulsatile Tinnitus: Recent Advances in Diagnosis," Aristides Sismanis MD, Wendy R. K. Smoker, MD, The Laryngoscope, Volume 104, Issue 6, pages 681-688, June 1994. ABSTRACT (Summary)

Article: "Neuroradiologic Assessment of Pulsatile Tinnitus," Department of Otolaryngology Head and Neck Surgery Loyola University Medical Center, Maywood, IL: Dr Kircher and Dr Leonetti; Department of Otolaryngology-Head and Neck Surgery Henry Ford Health System, Detroit, MI: Dr Standring; Presented at the Annual Meeting of the American Academy of Otolaryngology-Head Neck Surgery, Chicago, IL. Sept. 22-24, 2008. (CLICKING THIS LINK WILL DOWNLOAD THE PDF FILE)

Article: "Imaging of Tinnitus: A Review," Jane L. Weissman, MD and Barry E. Hirsch, MD, Radiology, August 2000.

Article: "Imaging in Pulsatile Tinnitus," G. Madania and S.E.J. Connor, Clinical Radiology, Volume 64, Issue 3, Pages 319-328 (March 2009).

Article: "Imaging of the Patient With Tinnitus," Mary Beth Cunnane MD, Massachusetts Eye and Ear Infirmary, December 31, 2013. (NEW! Mentions Whooshers.com and PULSATILE tinnitus as well.)

Article: "Imaging of Pulsatile Tinnitus: A Review of 74 Patients," Guner Sonmez, C Cinar Basekim, Ersin Ozturk, Atilla Gungor, Esref Kizilkaya, Clinical Imaging, Volume 31, Issue 2, Pages 102-108 (March 2007). (This is an abstract/summary-you have to pay to see the article in its entirety)

Article: "Pulsatile Tinnitus: A Review of 84 Patients," Daniel Waldvogel, Heinrich P. Mattle, Matthias Sturzenegger and Gerhard Schroth, Journal of Neurology, Volume 245, Number 3, 137-142, DOI: 10.1007/s004150050193, November 12, 1997.

Article: "Role of Angiography in the Evaluation of Patients With Pulsatile Tinnitus," Edward J. Shin, MD; Anil K. Lalwani, MD; Christopher F. Dowd, MD, Laryngoscope 110: November 2000. (PDF FILE)

Article: "Angioplasty and Stenting for Intractable Pulsatile Tinnitus Caused by Dural Venous Sinus Stenosis: A Case Series Report," Li Baomin, Shi Yongbing, and Cao Xiangyu, Dept of Neurosurgery, Chinese PLA General Hospital, Beijing, Otol Neurotol. 35.366-370. Dec 2014.

Article: "CT Angiography as a Screening Tool for Dural Arteriovenous Fistula in Patients with Pulsatile Tinnitus: Feasibility and Test Characteristics," J. Narvid, H.M. Do, N.H. Blevins and N.J. Fishbein, American Journal of Neuroradiology 32:446-453, March 2011.

Article: "Brain Dural Arteriovenous Fistula (BDAVF)," Patient Information, www.NeuroAngio.org

Article: "Usefulness of C-Arm Cone-Beam Computed Tomography in Endovascular Treatment of Traumatic Carotid Cavernous Fistulas: A Technical Case Report," Sato, Kenichi MD, PhD; Matsumoto, Yasushi MD; Kondo, Ryushi MD, PhD; Tominaga, Teiji MD, PhD, Neurosurgery: August 2010 - Volume 67 - Issue 2 - p 467470.

Article (Abstract): "A Convenient Sonographic Technique for Diagnosis of Pulsatile Tinnitus Induced by a High Jugular Bulb," The American Institute of Ultrasound in Medicine, Minoru Nakagawa, MD, Norimitsu Miyachi, MLT and Kenjiro Fujiwara, MD, Department of Neurosurgery (M.N., K.F.) and Clinical Laboratory (N.M.), Kosei General Hospital, Hiroshima, Japan, J Ultrasound Med 27:139-140 0278-4297, 2008.

Article: "Surgical Treatment of the High Jugular Bulb in Patients with Ménières Disease and Pulsatile Tinnitus," V. Couloigner, A. Bozorg Grayeli, D. Bouccara, N. Julien and O. Sterkers, European Archives of Oto-Rhino-Laryngology Volume 256, Number 5, 224-229, DOI: 10.1007/s004050050146 (ABSTRACT)

Article: "Brain AVM," (arteriovenous malformation), MayoClinic.com

Article: "Chiari Malformation," MayoClinic.com

Article: "Ménière's Disease," National Institute on Deafness and Other Communication Disorders (NIDCD)

Article: "TMJ Disorders," MayoClinic.com

Article: "Anemia," American Society of Hematology, Hemotology.org

Article: "Pseudotumor Cerebri," (also called Benign Intracranial Hypertension) MayoClinic.com

Article: "Pulse-Synchronous Tinnitus," The Intracranial Hypertension Research Foundation

Article: "Coarctation of the Aorta," MayoClinic.com

Article: "Man Cured of Hearing His Eyeballs Move," www.bbc.co.uk, July 27, 2011. Superior Canal Dehiscence Syndrome (SCDS)

Article: "Diagnosis and Cure of Venous Hum Tinnitus," Laryngoscope, Chandler JR, 93(7):892-5, July 1983.

Article: (Abstract) "Sinus Wall Reconstruction for Sigmoid Sinus Diverticulum and Dehiscence: A Standardized Surgical Procedure for a Range of Radiographic Findings," Dr. DJ Eisenman, Department of Otorhinolaryngology - Head & Neck Surgery, University of Maryland School of Medicine, Baltimore, Maryland; Otology Neurotology, 32(7):1116-9; September 2011.

Article: (Abstract) "Awake Embolization of Sigmoid Sinus Diverticulum Causing Pulsatile Tinnitus: Simultaneous Confirmative Diagnosis and Treatment," Park YH, Kwon HJ, Department of Otolaryngology-Head and Neck Surgery, Chungnam National University School of Medicine, Daejeon, Republic of Korea, Interv Neuroradiol. 2011 Sep;17(3):376-9. Epub 2011 Oct 17. (NEW!)

Article: "A New Therapeutic Procedure for Treatment of Objective Venous Pulsatile Tinnitus," Sanchez TG, Murao M, Medeiros HRT, Kii M, Bento RF, Caldas JG, et al. Int Tinnitus J. 2002;8(1):54-57.

Article: "Glomus Tympanicum," The New England Journal of Medicine, Volume 362:e66, Number 22, June 3, 2010.

Article: "Resolution of Pulsatile Tinnitus Following an Upper Mediastinal Lymph Node Resection," Wang YZ, Boudreaux JP, Campeau RJ, Woltering EA, South Med J. 2010 Apr;103(4):374-7.

Article: (Abstract) "Dissection of the Internal Carotid Artery After SCUBA-Diving: A Case Report and Review of the Literature," Franz Hafner, MD,* Thomas Gary, MD,* Froehlich Harald, MD,* Ernst Pilger,* Reinhard Groell, PD,w and Marianne, Brodmann* "Neurologist. 17(2):79-82, March 2011. (NEW!)

Article: "Carotid-Cavernous Sinus Fistula," Bobby S. Korn, M.D., Ph.D., and Kang Zhang, M.D., Ph.D., N Engl J Med 2011; 364:e15, February, 24, 2011. (WARNING: GRAPHIC IMAGES)

Article: "Pulsatile Tinnitus Cured by Mastoidectomy," Duvillard C, Ballester M, Redon E, Romanet P., Department of Otolaryngology-Head and Neck Surgery, Hôpital Général, Dijon, France, Ann Otol Rhinol Laryngol, September 2004.

Article: "Pulsatile Tinnitus: A Symptom of Chronic Subclavian Artery Occlusion," Marcio Francisco Lehmann, Charbel Mounayer, Goetz Benndorf, Michel Piotin, and Jacques Moret, AJNR Am J Neuroradiol 26:19601963, September 2005 (PDF).

Article: "Carotid Endarterectomy Relieves Pulsatile Tinnitus Associated with Severe Ipsilateral Carotid Stenosis," J Kirkby-Bott, H.H Gibbs, European Journal of Vascular & Endovascular Surgery, Volume 27, Issue 6, Pages 651-653, June 2004.

Article: "MR Angiography Imaging of Absence Vertebral Artery Causing of Pulsatile Tinnitus: A Case Report," *Mehmet Cudi Tuncer; **Yekta Helbest Akgül & *Özlen Karabulut,* Department of Anatomy, Faculty of Dicle University, 21280, Diyarbak¹r, Turkey.** Department of Otorhinolaryngology, Özel Diyarbakr Hospital, 21100, Diyarbakr, Turkey, International Journal of Morphology, v.28 n.2 Temuco Jun. 2010."

Article: "Endovascular Treatment of Sigmoid Sinus Aneurysm Presenting as Devastating Pulsatile Tinnitus. A Case Report and Review of Literature." Mehanna R, Shaltoni H. Morsi H, Mawad M., Interv Neuroradiol. 2010 Dec;16(4):451-4. Epub 2010 Dec 17.

"Pulsatile Tinnitus Caused by an Aneurysm of the Transverse-Sigmoid Sinus: A New Case Report and Review of Literature," Lenck S, Mosimann PJ, Labeyrie MA, Houdart E., Department of Neuroradiology, hôpital Lariboisière, 2, rue Ambroise-Paré, 75010 Paris, France, J Neuroradiol. 2012 Oct;39(4):276-9. doi: 10.1016/j.neurad.2012.02.001. Epub 2012 Sep 29. (NEW!)

Article: "Intractable Tinnitus and Sensorineural Deafness Cured by Surgical Correction of Coarctation of Aorta," S. Rathinam, A.M. Pettigrew, J.C.S. Pollack, Interactive Cardiovascular and Thoracic Surgery 3:431-433 (2004).

Article: "Pulsatile Tinnitus," Don McFerran FRCS Consultant Otolaryngologist Essex County Hospital, Colchester, British Tinnitus Association, October 2007.

Article: "Pulsatile Tinnitus and Dural Arteriovenous Malformation (Dural AVM)," G. A. J. Morrison, The Journal of Laryngology & Otology (1989), 103:1073-1075 Cambridge University Press (ABSTRACT).

Article: "Medical Mystery: Giving Birth Didn't Ease a Woman's Dangerous Hypertenstion," Sandra G. Boodman, The Washington Post, October 17, 2011.

Article: "That Noise Wasn't Just Tinnitus," Sandra G. Boodman, Special to The Washington Post, July 7, 2009

Article: "What's That Noise In Her?" H. Lee Kagan, Discovery Magazine, January 2006. (About a patient with arteriovenous malformation (AVM) and her doctor whose patience and persistence paid off).

Article: "The 'Rare' Disease That Isn't," Thomas M. Burton, The Wall Street Journal, June 27, 2009

Article: "Diseases and Conditions/ Fibromuscular Dysplasia (FMD)," Cleveland Clinic. Lists symptoms, details, treatments, and resources including Whooshers.com.

Article: Unraveling Pulsatile Tinnitus in FMD: A Report of the United States Registry For Fibromuscular Dysplasia."

Video: "A Rare Disease That May Be Underdiagnosed," Thomas M. Burton, June 26, 2009 (Hear an example of a whooshing sound in this short video)

Whooshers.com Pulsatile Tinnitus Sounds (Real Ones Recorded by Real Whooshers!)

Audio: Having trouble describing the sound you hear to others? Listen to this collection of sounds that whoosh and see if you can find a match to yours! Demonstrations: Heart Sounds & Murmurs, from the University of Washington Department of Medicine

Audio: FREE White Noise from White Noise MP3s.com

Audio: SimplyNoise.com

Whooshers.com Review: SleepPhones- Soft, comfortable headphones to help mask the whoosh for a good night's sleep.

Click Here for the International Association for Suicide Prevention (IASP)

Replace "ringing" with "whooshing," and here it is: our theme song.